Blog Entries

Well Hello There :) We may have gotten lost there for a little while, but time to catch up! I feel like this month was a turning point for us. After a emotional month three with the hospital visi...

Family photos we had taken when Emerson was a baby.

We didnt get such great news when we arrived this morning. Due to the pulmonary hypertension Emerson was having issues with his blood pressure dropping extremely low. Any movement whether it was a kic...

Grant and I got pretty decent sleep last night, mostly because we were so exhausted! We made it back to the hospital for rounds at 7am. When we arrived at the hospital the nurses said Emerson did ...

Surgery day....we have made it! We started the day bright and early at 4am! Not sure Id call 4am so bright. LOL We had everything packed the night before so we didnt have to rush around for last ...

Today was Emerson's preoperative evaluation at Detroit Children's Hospital. The evaluation had a few steps, but all procedures that Emerson has had done before. So was an easy day on our nerves :) ...

Happy Belated Three Month Emerson! The days are seriously getting away from me so fast! Month two was an emotional one! We started the month off with Emerson's first outing, that wasn't to a doct...

Sorry for such a late post but... Happy Two Months Baby Emerson! Emerson's second month was great! We were lucky to have daddy home with us for 2 weeks out of the month before he went back to ...

How is it already the holidays? They have really snuck up on us this year! Emerson's first holidays are not being celebrated like the typical holidays. But nothing these last few months have been ...

This morning we had Emerson's weekly cardiology appointment, and have some not so great news. A chest X-ray confirmed his lungs have filled with an extreme amount of fluid. This is expected to hap...